So Alice has a new ‘Little Ear’. Sadly this is nothing more exciting than a new, high-powered hearing aid she will have to wear as part of her assessment for her ‘Proper Ear’ number 2.
Remarkably, she seemed to be hearing something through it when it was first fitted last week, but since then nothing. Inevitable really. It still seems that Alice’s ANSD means her hearing deteriorates the more her ears are stimulated. Her implanted ear clearly now bypasses this problem, but it does add credence to Tony Sirimanna’s suggestion that she might have a problem with depletion of the neurotransmitter at the synaptic junction to the auditory nerve (I think I know what that all means).
Anyhow, for the first week she wore it with some pride and showed it off to everyone at school. Now, as she is getting no benefit, she has developed an annoying habit of hiding it around the house so we can’t find it and put it back on. We knew this would happen, but we are still trying our best.
Surgery could be as soon as early June if all goes well, which I think is a good thing. It would give her the School summer holidays to begin her adjustment and to get used to having two ears at last. I still don’t like to think about it. Surgery is never pleasant, least of all on one so young and I don’t think Alice is yet old enough to understand what is in store for her.
On the positive side, her speech continues to improve every day. She has become something of a singer, although I do think we need to teach her some new songs as all she seems to do is repeatedly recite the ones she learnt for her Christmas Nativity at School. We now have a CD of them in the car and it does feel a little odd driving along listening to songs about how “Jesus was born in a stable….” in March.
Mind you, given her less-than-perfect hearing, Alice seems convinced that “Jesus was born on a table”. It makes me smile anyway.
Hi, it occurs to me that Alice might like a CD called ‘Time to Sing’, available from the Apraxia Foundation (Apraxia is another term for verbal dyspraxia) – and I seem to recall, Black Sheep Press. It may not be appropriate but contains some popular childrens’ tunes that have been slowed down for children with speech impairment, so they can join in. It’s very engaging and my son loved it – it really helped him begin to access singing and music and he is now extremely musical!
wow – that’s wonderful. I will look it up right away…
Lovely, I really hope she enjoys it as much as my boys did!
Hello. I wanted to pass along a thank you note. My son is 2.5 weeks old and failed his ABR testing in the hospital after birth. We were then sent for follow up testing today, where he passed the OAE testing, but again failed the ABR. I’ve been frantic all afternoon, googling like crazy, a complete nervous wreck.
We still aren’t certain of a diagnosis, and we have more tests scheduled in two weeks, but your site gave me hope and a much needed feeling of peace. For that, I thank you dearly.
best of luck with everying Erin – do let us know if we can offer any thoughts……