Alice’s OAE was, again, normal but she had an absent ABR up to 90db. She was then referred to the Audiology department at St. George’s Hospital in London. In between times, we chose to seek the advice of one of St. George’s Consultant ENT Surgeons who runs their Cochlear Implant programme, Mr. David Selvadurai, who diagnosed Alice with Auditory Neuropathy Spectrum Disorder (ANSD).
For her 2nd birthday, Alice received a cochlear implant on her right ear and shortly after her 4th birthday was implanted on the left side. Since switch on we have been working with her every day to improve her access to speech and language. Alice is a bright little girl and now communicates wonderfully with her peer group through speech . Alice graduated from Auditory Verbal UK in Oxford and is currently flying-high in Year 1 at Notre Dame School in Cobham. Alice is now beyond age appropriate in her language.
Meet Oliver (if you haven’t already done so)
Oliver was born in April 2012; our third beautiful child. Owing to Alice’s hearing disability, we knew to be careful third-time-round and the morning after his birth, Oliver had both an OAE and ABR test. Our worst nightmares were realised as we were told that Oliver too had inherited ANSD. Guilt doesn’t even begin to describe our emotions.
Oliver is now one and has been bilaterally implanted (just after his first birthday) and, like Alice, will grace the corridors of Auditory Verbal UK. We can only hope for a similar outcome and, with his age advantage, we are confident he will do well.