Category Archives: Cochlear Implant

The best Christmas Present ever ……

January 7, 2013 By in an/ad, ANSD, Auditory Neuropathy, auditory neuropathy spectrum disorder, Cochlear Implant, hearing loss Leave a comment

Whilst the world enjoyed the joyful celebration that is Christmas, in the Campbell household, Christmas was particularly special this year.

2012 has been a very mixed year, in some ways the most amazing with the safe arrival of Oliver, but then his deafness has also continued the hard work of the last couple of years. But without a doubt, one of the highlights of the year, was Alice’s final session at AV UK. After 3.5 years on the course, Alice graduated with above age appropriate language and we are cast adrift into the world. Alice just thought it was an excuse to eat cake and tell Rosie about her world, we were secretly shedding a tear of pride.

When Rosie told Alice she wasn’t coming back because she had learned to talk and listen so well, Alice just answered,”I know.………….”

We have created a self-assured little girl who is more than capable of speaking for herself. Leaving AV is really hard for parents. They have been the most incredible support and holder of our hands. I always tell people that the second call we made after family was to AV when Oliver was diagnosed. We needed them to remind us that it was all going to be ok. When problems have arisen, our concerns and emails are always answered in a calm and reassuring manner. We put our faith in them when they said they could change Alice’s fortune and to trust them – we did.

I would be more scared if I didn’t know we’d be back there in a month’s time for Oliver. By the time he graduates, we will be experts.

But in the meantime, Merry Christmas and thank you Santa for the greatest gift, Alice’s future.

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Our Pom!

ANSD on the BBC

October 18, 2012 By in ANSD, Auditory Neuropathy, auditory neuropathy spectrum disorder, Cochlear Implant Leave a comment

As some of you will be aware (not least, because we have mentioned it here a few times), the BBC have kindly commissioned a short piece (around 15 minutes) as part of next week’s ‘See Hear’ programme, about ANSD. This will be the first television programme, anywhere in the world (so far as we are aware) to help raise the profile of ANSD. I can only thank the BBC for believing in us when we wrote to them…It will include an interview with Kai Uus from the Uni of Manchester, an interview with Alice’s CI surgeon, David Selvadurai (including film of him operating), interviews with us and plenty of footage of Alice at School and in Audiology. We are all very excited (none more so than Alice herself)

Anyhow, the programme will be aired next Wednesday, 24th October at 1300pm on BBC2. It will be repeated twice thereafter and will be available on the BBC’s iPlayer after the event. We will try to get a copy put up on the blog for those of you in other countries who can’t view it first-hand. More info can be found here: BBC See Hear Website – let us know what you think when you’ve seen it (we haven’t seen it yet ourselves).