Alice's Ears

A Web Resource and Blog For Parents of Children With Auditory Neuropathy Spectrum Disorder (ANSD)

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  • A DATE !!!!

    February 3, 2009 By Claire aka Mummy in Uncategorized 4 Comments

    Ready or not Alice has a provisional surgery date in 5 weeks time of the 6th March.  A few small hurdles to overcome between now and then, but a date nontheless

    Are we ready ? Will we ever be? 

    The reality of the surgery itself looms large but the potential for our little girl to start to hear the world is incredible.  We’re scared and hope that we are making the right decision (dear Alice, we do it with the best intentions) but the waiting will soon be over.

    To see her signing last night made me cry (bye bye brother and kiss kiss) at bedtime, to hear her say it one day will put the whole world into context.

    Dear friends, please keep her safe in your thoughts and wait for the biggest party ever when the outcome becomes clear.

     imby-002

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  • The Ministry of Misinformation

    February 3, 2009 By Alice's Daddy in Uncategorized Leave a comment

    Friday was the last (allegedly) of Alice’s Audiology appointments prior to the review meeting on March 6th. As she had only just received the new moulds for her new aids they decided to postpone this to give her more of a chance to settle in with them.

    There are two issues with this: Firstly, i only found this out once I had arrived at the hospital. Secondly, her aids feed back so badly and have obviously hurt her that she wont let them near her now.

    I said to the CI manager that it wasn’t a problem that they were postponing the audiology as we now have the 6th March as a back-stop date, so long as it was before that. She said that we needed a break, having been at the hospital so often. She also, as an afterthought, mentioned that the 6th March wasn’t the date for her review, it was the date for her surgery!!!

    This was caveated with a “I’m pretty sure, I’ll call you to confirm”.

    No call as yet, but this could be (not holding my breath) the best news for little Alice yet. We may finally be there in only 5 weeks!

    Nonetheless, Alice keeps smiling

    Little Alice

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Recent Posts

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Blogroll

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Recent Posts

  • Could you be a part of the next hearing loss breakthrough? 
  • The end of an era…..perhaps
  • A Little Bit of History Repeating…
  • One year on….
  • It’s Funny What It Takes…

ANSD / CI Links

  • Auditory Verbal UK
  • Charles (Chuck) Berlin
  • Christopher Place
  • CI Surgery Video
  • CICS
  • Cochlear – Nucleus Implants
  • National Deaf Children’s Society (NDCS)
  • The Cued Speech Association
  • The Ear Foundation
  • The Elizabeth Foundation
  • The Graham Fraser Foundation
  • The Sydney Cochlear Implant Centre (SCIC)
  • Yahoo ANSD Group

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