Alice's Ears

A Web Resource and Blog For Parents of Children With Auditory Neuropathy Spectrum Disorder (ANSD)

Skip to content
  • Home
  • About Alice and Oliver
  • Blog
  • What is ANSD? (Updated)
  • Other ANSD Journeys…
  • Facebook ANSD Group
  • Cochlear Implants
  • Glossary
  • SEN / Statementing
  • Useful Reading
    • ANSD Clinical Studies
    • ANSD Presentations
    • Cochlear Implants in ANSD
    • Articles to make you smile…
  • Find An Expert
  • The best Christmas Present ever ……

    January 7, 2013 By Claire aka Mummy in an/ad, ANSD, Auditory Neuropathy, auditory neuropathy spectrum disorder, Cochlear Implant, hearing loss Leave a comment

    Whilst the world enjoyed the joyful celebration that is Christmas, in the Campbell household, Christmas was particularly special this year.

    2012 has been a very mixed year, in some ways the most amazing with the safe arrival of Oliver, but then his deafness has also continued the hard work of the last couple of years. But without a doubt, one of the highlights of the year, was Alice’s final session at AV UK. After 3.5 years on the course, Alice graduated with above age appropriate language and we are cast adrift into the world. Alice just thought it was an excuse to eat cake and tell Rosie about her world, we were secretly shedding a tear of pride.

    When Rosie told Alice she wasn’t coming back because she had learned to talk and listen so well, Alice just answered,”I know.………….”

    We have created a self-assured little girl who is more than capable of speaking for herself. Leaving AV is really hard for parents. They have been the most incredible support and holder of our hands. I always tell people that the second call we made after family was to AV when Oliver was diagnosed. We needed them to remind us that it was all going to be ok. When problems have arisen, our concerns and emails are always answered in a calm and reassuring manner. We put our faith in them when they said they could change Alice’s fortune and to trust them – we did.

    I would be more scared if I didn’t know we’d be back there in a month’s time for Oliver. By the time he graduates, we will be experts.

    But in the meantime, Merry Christmas and thank you Santa for the greatest gift, Alice’s future.

    20130107-210807.jpg

    Our Pom!

    Share Alice's Ears:

    • Share on X (Opens in new window) X
    • Email a link to a friend (Opens in new window) Email
    • Share on Facebook (Opens in new window) Facebook
    • Share on Pinterest (Opens in new window) Pinterest
    Like Loading...
  • Updated NHS Guidelines

    November 7, 2012 By Alice's Daddy in auditory neuropathy spectrum disorder Leave a comment

    The NHS has published new guidlines on the management of ANSD. They’re not perfect, but they’re a lot better than anything we’ve seen so far….Interestingly the further tests they refer to are being investigated in the clinical study that Oliver has enrolled in at the University of Manchester.

    Well worth a read whichever side of the pond you are on.

    Of course, as we all know here in the UK, getting anyone to actually follow these will be the next challenge….I’ll bet you anything you like, the majority of Audiology departments won’t even have seen these, let alone read or implemented them by the end of 2013. 

    2012 NHS Guidelines for the Management of ANSD

    Share Alice's Ears:

    • Share on X (Opens in new window) X
    • Email a link to a friend (Opens in new window) Email
    • Share on Facebook (Opens in new window) Facebook
    • Share on Pinterest (Opens in new window) Pinterest
    Like Loading...

Post navigation

« Older posts
Newer posts »

Link To Facebook ANSD Group

  • Click Here To Join / Visit Group

Follow on Twitter

Follow @Alices_Ears

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 333 other subscribers

Blog History

February 2026
M T W T F S S
 1
2345678
9101112131415
16171819202122
232425262728  
« Jan    

Recent Posts

  • Could you be a part of the next hearing loss breakthrough? 
  • The end of an era…..perhaps
  • A Little Bit of History Repeating…
  • One year on….
  • It’s Funny What It Takes…
  • The Story About My Ears…
  • Alice & Ollie in The Observer…
  • One….two….three….goooooooooo
  • More Running….
  • More fantastic work from AVuk…

Blogroll

  • Being Paul's Mum
  • Calum's Story
  • Campbell Burns
  • Guerrilla Mum
  • Loz's Medical Journey

Recent Posts

  • Could you be a part of the next hearing loss breakthrough? 
  • The end of an era…..perhaps
  • A Little Bit of History Repeating…
  • One year on….
  • It’s Funny What It Takes…

ANSD / CI Links

  • Auditory Verbal UK
  • Charles (Chuck) Berlin
  • Christopher Place
  • CI Surgery Video
  • CICS
  • Cochlear – Nucleus Implants
  • National Deaf Children’s Society (NDCS)
  • The Cued Speech Association
  • The Ear Foundation
  • The Elizabeth Foundation
  • The Graham Fraser Foundation
  • The Sydney Cochlear Implant Centre (SCIC)
  • Yahoo ANSD Group

Enter your email address to follow this site and receive notifications of new posts by email.

Join 333 other subscribers

Alice's Ears

Footer menu

  • Home
  • About Alice and Oliver
  • Blog
  • What is ANSD? (Updated)
  • Other ANSD Journeys…
  • Facebook ANSD Group
  • Cochlear Implants
  • Glossary
  • SEN / Statementing
  • Useful Reading
  • Find An Expert
Blog at WordPress.com.
↑
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Subscribe Subscribed
    • Alice's Ears
    • Join 122 other subscribers
    • Already have a WordPress.com account? Log in now.
    • Alice's Ears
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d