At around 1pm on saturday I was officially awarded the title.
Alice’s implant was missing, on my watch. A simple trip to take Joseph and his friend to a party ended with tears. All three children were strapped into the car and I checked Alice’s ear before we left. 5 minutes later she was saying ear and pointing and I thought she must have taken it off, something that she does in the car. Joseph and his friend safely inside I started the frantic search. If you ever need to know where raisins can be hidden in a car seat or a landrover I can now tell you. Short of tearing the carpets out I looked everywhere. Alice was strip searched and dear friends helped me to look (a huge thank you to them x).
So there I was, in Tolworth, without her ear, Alice was in tears (mainly from being hungry and needing the loo), I was in tears and there was no implant to be found. 2 phone calls later (one to Chris who was of course rational) and one to my mum, who bless her couldn’t understand a word and thought I’d crashed the car. She came to find me 10 mins later. Chris’s theory was “if you’ve searched the car and it’s not in there, it’s not in there”… rationality doesn’t come into it, when you are thinking about how many days Alice will be deaf, without her ear and feeling sick to the stomach at the awfulness. Joseph, bless him, when told said ” well you’ll just have to find it mummy”. So Mum, my step dad, Tony and Alice all drive home, I search the car, the car park, my purse and my mind and decide to look at home. On reaching the drive, mum phones to say, they’ve found it. On the drive, next to where the car was parked, I must have knocked it, whilst putting her into the car.
All this serves to make us realise the fragility of Alice’s hearing. Of course a very short time without her ear will not change her outcome, but to have come so far and then lose momentum, was too much to bear. Only those that have been on the journey will understand the level of fear. Still, at least I didn’t drive over it. Since surgery, it’s the first time, I have wished that she had bilaterals.
Daddy would like to point out at this juncture, that when he received said, tearful phonecall, he was standing in the middle of a field in West Sussex with a gun under his arm, dressed as Toad of Toad Hall. It was a case of either “be rational” or “shoot the dog”.
Hi Claire and Chris,
My name is Michelle i left you a message awhile ago about my son who also has ANSD. It gives me such joy and hope to read that Alice is doing so well as my son is having bilateral cochlear implants in two weeks time! I am so worried but hope that in months to come i can look back and see my son doing as well as your little girl.
All the to you all
fingers crossed that the operation went well and you’ll be mapped for Christmas ?