A week arrives where we have nothing to do. No appointments, no means of pressing on with Alice’s treatment, nobody to nag.
time for an email to David Sevadurai:
“It has been a couple of weeks since we last spoke to discuss the results of Alice’s various tests. You mentioned on the phone that you would be entering Alice into the Cochlear Implant programme at St. George’s to give her access to the various support services, including Speech and Language Therapy at Christopher Place. We had already contacted them directly, so would like to understand how to progress this.
We are both extremely pleased with the contact we’ve had with you and the interest you are taking in Alice’s development.
We had a coffee over the weekend with Neil Donnelly who as you know has just completed the Graham Fraser Fellowship in Sydney (as you did before him). We share a mutual friend and he lives only 1/2 a mile from us. It was interesting to get a further insight into Cochlear Implantation and what this entails, particularly with reference AN/AD. Interestingly, he highlighted the far more ‘aggressive’ manner in which children are treated in Australia.
It has long been our belief that Alice will end up being implanted. Even if the hearing aids do provide some benefit in the short term (which up until now does not appear to be the case) from the evidence we have heard so far, it would seem her best possible chances lie in her having an implant fitted. Equally, as we have discussed before, the sooner this is done the better – certainly before she is 2. We are due to see Tony Sirimanna next Thursday and will be interested to hear his thoughts on this.
With Alice’s second birthday rapidly approaching (end of March) we are both keen that if implantation is the best course of action for her that, if at all possible, she is implanted and ‘switched on’ well in advance of this. To this end, maybe you could enlighten us as to what the process and timings are likely to be from here (Neil suggested the funding decision process normally takes around six weeks?) and, if anything, what we can be doing to ensure that Alice receives such treatment at the earliest possible opportunity.
Do let us know your thoughts.”
crosses fingers and awaits response.