A Moment of Reflection…

It’s been a while since we posted here. A lot has happened in a few short months, but for today I wanted to put some words to paper for a wonderful woman who changed the world and our lives forever.

Jacqueline Stokes, founder of AVuk, amazing AVT, inspiration and dear friend. I could go on forever with adjectives to describe a woman whose infectious enthusiasm, dedication and unique manner took a moment of darkness for us and turned it to light. Everything Jacqueline stood for and everything she gave us has made the world so much a better place for Alice and now little Ollie . We were truly blessed to have met her.

The last time I saw Jacqueline in October at AVuk’s 10th Anniversary party, whilst doing my best to hold it together, I told her that she would never know what she had given us and how much she had done for our family. Jacqueline simply replied “Thank you for inviting me on the journey”. How very Jacqueline…

Jacqueline sadly passed away before Christmas and today we said our farewell.

We will all miss her forever as will the countless thousands of children and families whose lives she has touched.

Thank you Jacqueline.

A memory of happier times:

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Vocabulary…

One of the things us CI families have to come to terms with is, no matter how fantastically your child performs with their CI, the technology has limitations; after all, it is just technology. Remarkable as CIs are, the microphones, batteries and wires all have their own little bugs.

What we all have in common is that these limitations bring about predictable problems. One of these is vocabulary. CI children tend to be poorer at overhearing than other children. They don’t hear new words in context as well and hence their vocabulary can develop more slowly. Whilst a typical, hearing, child picks up new words from conversations they’re not even involved in, this can be more difficult for CI children. This isn’t a major problem. Alice’s language is above age appropriate; her use of language is fantastic (see how far we have come in four short years!) but she may not have a full Eskimo vocabulary of words for snow or understand colloquialisms as well as her friends. It’s a small problem, but one we are acutely aware of and we spend hours shoving new words her way. Reading has made a huge difference in this respect.

Alice swore for the first time today. I couldn’t be more thrilled.

She had overheard me shouting at a particularly noisy toy of Ollie’s (which was driving me particularly mad yesterday morning) and decided to demonstrate her new-found knowledge of expletives to the world. Hallelujah.

Every step is hard-fought, but every win feels oh so very special.

In the meantime, I thought you might enjoy a little video of Alice reading; we couldn’t be more proud of how far she has come and how well she is doing at school. For any families just starting on this journey, your dreams for your children are still possible and, just to warn you, they will swear too…