Alice's Ears

A Web Resource and Blog For Parents of Children With Auditory Neuropathy Spectrum Disorder (ANSD)

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    October 30, 2012 By Alice's Daddy in ANSD, Auditory Neuropathy, auditory neuropathy spectrum disorder 2 Comments

    We have been inundated since the programme about ANSD ran last week. Thousands of people have visited our little blog and we have had emails, messages of support and calls from all four corners of the globe.

    We are humbled and astounded.

    As I said to someone yesterday – we don’t have all the answers, but we are happy to point Parents in what is hopefully the right direction. In a world where the decisions you make based on ‘expert’ opinion have such far-reaching consequences, it is so important sometimes just to be able to talk things through with Parents who have been on the same journey, free of professional input or dogma.

    That’s why we started our forum last year and why we have put together the Parents network. The latter is already proving invaluable to some new families on the journey. The forum was, sadly, less successful, but I suspect that is down to us.

    We also have a Facebook group that we set up last year. We are not trying to detract from any of the other groups and forums that exist, but I can’t help thinking that there is still room for more, else we wouldn’t get so many emails and calls (which, of course, we are always happy to receive). So please do come along and join the group – say hi and ask some questions to get it going – I really hope it works. Do also pass it onto your friends and acquaintances.

    By Parents for Parents, that’s my moto….The blog will also update on there from now on.

    Parents of Children with ANSD Facebook Group

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  • So Here It Is – ANSD on the BBC

    October 24, 2012 By Alice's Daddy in auditory neuropathy spectrum disorder 2 Comments

    Let us know what you think – I think the message comes across really well and thank you so much – again – to the BBC for helping us to tell our story.

    ANSD on the BBC. See Hear, Series 32, Episode 19

    ANSD on the BBC. See Hear, Series 32, Episode 19

    You can also watch the vide, in two parts, on youtube here: ANSD Part 1 and here ANSD Part 2

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Recent Posts

  • Could you be a part of the next hearing loss breakthrough? 
  • The end of an era…..perhaps
  • A Little Bit of History Repeating…
  • One year on….
  • It’s Funny What It Takes…

ANSD / CI Links

  • Auditory Verbal UK
  • Charles (Chuck) Berlin
  • Christopher Place
  • CI Surgery Video
  • CICS
  • Cochlear – Nucleus Implants
  • National Deaf Children’s Society (NDCS)
  • The Cued Speech Association
  • The Ear Foundation
  • The Elizabeth Foundation
  • The Graham Fraser Foundation
  • The Sydney Cochlear Implant Centre (SCIC)
  • Yahoo ANSD Group

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  • About Alice and Oliver
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  • What is ANSD? (Updated)
  • Other ANSD Journeys…
  • Facebook ANSD Group
  • Cochlear Implants
  • Glossary
  • SEN / Statementing
  • Useful Reading
  • Find An Expert
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