Alice's Ears

A Web Resource and Blog For Parents of Children With Auditory Neuropathy Spectrum Disorder (ANSD)

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  • Hi Ollie…

    May 31, 2013 By Alice's Daddy in ANSD, Auditory Neuropathy, auditory neuropathy spectrum disorder, Cochlear Implant, hearing loss Tags: ANSD, Cochlear Implant, switch on 7 Comments

    ..after all the worrying, tears and sleepless nights, that was it. It was perfect. Welcome to the world Ollie; we hope you like it.

     

    Ollie Switch On

    Ollie Switch On

     

    For the rest of the day you can find me at the bottom of a bottle of wine….x

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  • 20th April 2012…

    May 30, 2013 By Alice's Daddy in ANSD, Auditory Neuropathy, auditory neuropathy spectrum disorder, Cochlear Implant, hearing loss Tags: ANSD, auditory neuropathy, Cochlear Implant 3 Comments

    …..the day after Ollie was born.

    I looked through the news archives for that day in an attempt to find some meaningful point of reference; some reminder that outside our little bubble the world goes on. Sadly nothing of note came up. A boring day indeed.

    Boring that is apart from it being the day we found out that our beautiful Ollie was deaf. That our genes had, yet again, conspired to defy the odds and bestow this most frustrating of problems on our son too. For us, it was the day the clocks stopped.

    We knew at that point the path we would be taking. The path Ollie would be taking. Given Alice’s trajectory and success, we knew all roads would lead, for us, for our children, for our family, to Cochlear Implants.

    The danger with making a choice so early on is that you live life in limbo until the next step is taken. That next step is ‘switch on’. Hate to admit it as I do, but Ollie’s life has so much been focused towards tomorrow. Towards the point at which the choices we have made for him come to a head and, God willing, Ollie reacts to his first sounds. The point at which Ollie will ‘hear’ for the first time. The rest is in our hands. Being in control I can handle, but for now we are still praying for that miracle. Still praying for Ollie to react as positively as Alice did and for God to shine on our little man.

    One moment in time will define whether we made the right choice and, in some ways, will set the course for the rest of Ollie’s life.

    No pressure then…..

    I am not a strong person, but strong we must be. Strong for Ollie and strong for our little family. Sometimes it gets too much and the magnitude of what lies in store tomorrow gets, frankly, too much.

    So do say a little prayer for our wee man and keep your fingers crossed at 1330 tomorrow when Ollie is switched on. Hopefully we will share our joy with you later tomorrow…..

    Road testing his new ears:

    20130530-230034.jpg

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Recent Posts

  • Could you be a part of the next hearing loss breakthrough? 
  • The end of an era…..perhaps
  • A Little Bit of History Repeating…
  • One year on….
  • It’s Funny What It Takes…
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Blogroll

  • Being Paul's Mum
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Recent Posts

  • Could you be a part of the next hearing loss breakthrough? 
  • The end of an era…..perhaps
  • A Little Bit of History Repeating…
  • One year on….
  • It’s Funny What It Takes…

ANSD / CI Links

  • Auditory Verbal UK
  • Charles (Chuck) Berlin
  • Christopher Place
  • CI Surgery Video
  • CICS
  • Cochlear – Nucleus Implants
  • National Deaf Children’s Society (NDCS)
  • The Cued Speech Association
  • The Ear Foundation
  • The Elizabeth Foundation
  • The Graham Fraser Foundation
  • The Sydney Cochlear Implant Centre (SCIC)
  • Yahoo ANSD Group

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