Coming of age

I don’t think we ever planned to get here.

I’m not sure what we were planning, but we have spent the past two days recounting our darling Alice’s story to the BBC and it has really got me thinking.

By way of an explanation, the BBC have picked up on the ANSD story and have been working with us, Kai Uus, St. George’s Audiology and David Selvadurai to make a short documentary about ANSD and Alice and Oliver’s story. Wow. All I can say is thank you so much to Louise, Jane and Jean who made the whole experience so much fun and for believing in our story. We will let you know when the programme will be out. I hope it continues to further awareness of ANSD and to help answer the questions of parents who find themselves in our boat.

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Anyhow. This also got me thinking. We have now had so many emails through our humble little blog. We are touched every day by the families who thank us for sharing our story. We are so lucky we have got to meet so many of you. This is what got me thinking. In the UK at least, how would experienced families feel about volunteering to meet with new families to offer help and advice? Or would you be happy, at the very least, to share your contact details with us to share with others?

I met a doctor in a corridor at St. George’s today who I had never met before, but who knew Alice’s blog. We get over 100 hits a day. Facebook it is not, but we now feel a real sense of duty to make a difference to the ANSD world. What would you do?

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