Graham Carrick (67), Oliver Campbell (0.5)

It is by a strange coincidence that as Graham Carrick celebrates the 30th anniversary of becoming the world’s first cochlear implantee, Oliver Campbell begins his journey to receive his implants.

At the time of Carrick’s surgery, the processor was, I am told, the size of a cupboard and could only be used in the lab. Oliver, fortunately, will receive two processors the size of hearing aids.

Tomorrow, little Oliver visits St. George’s (yet again – he was there getting new hearing aid moulds and having audiology today), but this time he will have his first taste of general anaesthetic. Oliver is having an MRI, CT and more ABR testing whilst asleep. You can’t (obviously) get a six-month-old to lie still for an hour in a scanner. I hated it when Alice went for the same tests. She was somewhat older and screamed herself to sleep as they held the facemask on. Oliver will be confused and, more importantly, very hungry.

That said, they are robust little things babies. He will probably barely notice what has happened and will be back home again by the afternoon. All we can hope for is that it passes without hitch and that the scans tell us what we want – that being that Oli’s inner ear physiology and the health of his auditory nerve are as they should be and that, all being well, his CI journey will be as successful as Alice’s.

So do spare a thought for the wee man tomorrow as he goes under at 10am.

Also, google Graham Carrick and read a little more of his story. It really is a wonder and, Professor Clark, let’s hope your invention can help our little boy too…

Little Oliver

Calling all parents in the UK…

Over the past four years of blogging, we have been contacted by over 100 parents and families who are finding their way through the minefield of information and disinformation about ANSD.

We do our best to keep up and to help.

Alice’s Ears has had over 30,000 unique visitors and currently has around 100 unique visitors a day. Blimey!

In the UK at least, it can feel very lonely. We try to offer advice and comfort where we can, but what, at the end of the day, do we know? We can only share our own story (of which more will appear in the BBC programme on 24th October (tbc)). We also do our best to help the ‘scientists’ to further the understanding, diagnosis of and prognosis for children with ANSD.

With all this in mind, I wanted to ask you all a favour. If you would be happy to be included on a list (which we will keep) to offer your help to newly diagnosed families, could you send a note by emailing us through this link

I propose to keep a country-wide list that we can share with new parents who contact us. Hopefully then, parents can meet up and share their experiences – something we have been lucky enough to do with a good number of you.

In addition, if you are parents of newborns or very young infants with ANSD and would be prepared to join a research study at the University of Manchester (Oliver has already signed up – Alice was too old!) then we can put you in touch.

Help us to help others…..