Progress

I’m not really sure any of us knew what to expect after Alice was switched on. You can read every blog, paper, book and website you like to get a feel for the progress your child might make when they are activated, but in reality, it is a classic case of idiosyncrasy. Add to that the natural anxiety of being a parent and the minute-by-minute examination of the minutiae of Alice’s behaviour – is she hearing me or is she just lip reading? –  and the whole process becomes very confusing.

All this said, I cannot believe the progress Alice has made in the 1 month she has been switched on. She is already consistently responding to sounds and is showing first signs of being able to differentiate between different noises. I have been absolutely blown away. Equally, the ease with which she wears her ‘new ear, and the rapidity with which she has moved up through her maps – she is now basically up at ‘full volume’ (a dynamic range of 44) after 4 weeks – is more than we could ever have hoped for. 

I have no doubt that this whole process will be a case of two steps forward and one back, but that still means we are moving in the right direction.

Alice has had some remarkable and staggering assessments from her various SLTs so far, one even saying that she had ‘never seen a child implanted at Alice’s age who had progressed so rapidly’ – this from one of the SLTs at Christopher Place who, you would imagine, has seen quite a few CI users!

Best of all, Alice has developed the ability to say Ma-Ma. Something we both dreamed of, but had not expected for anything up to 12 months from now, if she ever said it all. When she first said it clearly in the car on the way back from Devon last weekend, I have to say there was not a dry eye.

I think we are winning…..

I can hear…..

In my eyes at least, it couldn’t have gone better. I’ll let you make your own minds up by watching the videos. They are about 10 minutes each. ‘Switch on’ essentially consists of two parts. Firstly, the Speech processor is connected to a computer which feeds sounds directly into Alice’s implant. We hear these as beeps on the video, Alice as who-knows-what. These beeps are slowly increased in intensity to the point at which Alice reacts. This is conducted across five of the 22 electrodes to get a conservative estimate of Alice’s comfort thresholds at each point in the spectrum. A ‘sweep’ is then conducted across all 22 electrodes, programming them to the same sort of levels before the microphone and Alice’s bionic ear are switched on fully.  The tests are completed in the usual testing suite, Alice has been taught to look at a speaker in the corner that lights up with a dancing Winnie the Pooh when she reacts to the sound.

At first the programme is very conservative and quiet. Over time, the thresholds will be increased allowing Alice to experience more and more sound.

The first video shows Alice reaching her threshold level with the first electrode – the moment we had all been waiting for:

The Second shows Alice’s full switch on – welcome to the world Alice:

A Small miracle, but a miracle nonetheless.